Resources for collecting family history information

July 24, 2019

Mary E. Norton, MD, Renée L. Chard, MSc, CGC

In a busy obstetrical practice, use of a family history questionnaire or checklist is usually the most practical means of assessment.

In a busy obstetrical practice, use of a family history questionnaire or checklist is usually the most practical means of assessment. Asking patients to complete the questionnaire prior to the clinic visit can ensure that patients have time to contact family members as needed to collect more accurate information.

For more information on prenatal genetic testing - New Tools For Counseling On Prenatal Genetic Testing

US Surgeon General: My Family Health Portrait

https://www.cdc.gov/genomics/famhistory/knowing_not_enough.htm?CDC_AA_refVal=https://www.cdc.gov/features/familyhealthhistory/index.html

Tool for patients to create their own family tree (Available in English and Spanish)

National Society of Genetic Counselors: Your Family History - Your Future	https://www.nsgc.org/patient/familytree	Guidelines on how to gather and record family history information.
American Medical Association: Family History Tools	https://www.ama-assn.org/delivering-care/precision-medicine/collecting-family-history	Tools for collecting family history in prenatal, pediatric, and adult settings.
American Academy of Family Physicians: Family History Program	https://www.aafp.org/afp/2005/0801/p441.html	Guidance on efficient approaches for collecting and evaluating family history information.
Utah Department of Health	http://health.utah.gov/genomics/familyhistory/toolkit.html	Resource to help patients collect their own family histories.
March of Dimes	https://www.floridamedicalclinic.com/fmcobgyn/wp-content/uploads/sites/12/2016/04/March-of-Dimes-NEW-OB-ppw.pdf	Printable preconceptio/prenatal family and medical history questionnaire